I was reading some article in mycentraljersey.com when I ran across a touching piece. This article entitled, “Fundraiser to help child’s treatment” is about just that, raising money to help pay for Olivia Rae Vargas’ treatment for Traecher Collins Syndrome. Olivia is only ten months and was born with Traecher’s.
Traecher Collins Syndrome, also known as Franschetti-Zwahlen-Klein Syndrome or mandibulofacial dystosis is a genetic disorder that causes deformity to the face and skull. It is a very rare disease, affecting only one in 10,000 children born. Facial and cranial deformities tend to be downward slanting eyes, underdeveloped lower jaw, conductive hearing loss, underdeveloped cheekbones, drooping of the lateral lower eyelids and deformed or absent ears. Traecher Collins Syndrome is the result of a defect in the first arch during development.
I had to do a little research in order to find out what Traecher Collins Syndrome was and when I found out what this disease was, my heart sank. I cannot imagine how difficult this must be for Olivia’s parents. From what I was able to gather, treating this disease is not cheap. It involves numerous cosmetic surgeries to correct deformities. I wish the Vargas family the best of luck in collecting enough funds to help pay for her treatment. Hopefully, with the help of those who will give to this fundraiser, Olivia will be able to enjoy a normal life.
This fundraiser is sponsored by Kids in Production Incorporated Children’s Theater Company. The fundraiser will be held in the cafeteria of the St. Anthony of Padua Church in Port Reading from 3 to 7 p.m. On January 17, 2009. The fundraiser includes a pasta dinner, entertainment and childrens activities.
I f you cannot attend personally, you can make a monetary donation by sending a check to Kids in Production and mail it to P.O. Box 581, Metuchen New Jersey 08840. All proceeds from this fundraiser will go to benefit Olivia Rae Vargas and her fight against this terrible disease.
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